Well sorry I haven't written much in the last week, but no news is always good news.  He was off the phenobarb about one or two days then we had hot weather and afternoon storms so he was back on a low dose at night - then stressors and the full moon so again last night he didn't get the Pb - and he was fine. He was a bit "fussy" with us all day not sure why.

 

Now the question remains since he is coming off the Pb will he continue to stay so hungry all the time without the medication? I"m slightly curious about that one.

 

I must admit he is acting more puppish at times wants to play every day - he may actually be losing weight. we need to get him on a scale soon - I'm very curious to see if he actually has.  His walks have been limited due to the heat and the fact I can't over do it with him - and I continue to wash his feet when we come in and I automatically wet him down and put him in front of a fan to cool him off - but I won't walk if it's over 80 outside - it's just too hot here with the humidity.

 

So all in all - things are going fine for my Mae Mae!

 

Not much else is going on worth typing here.  If you have questions or want to email - you can always email at smartdiva@suddenlik.net

 

 

 

OMG it's 1207 and it's an eventful day today!

 

Today Mason offically comes off the phenobarb!!! Am I nervous - YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!! VERY NERVOUS!

 

Joan gets married today in less than 12 hours!!!! I"m so excited for her! what a day what a day! 

 

got two other wedding gifts bought tonight - and next week me and Lisa take out our friend Jen for her's.  Busy lately!  Mason's mother in law (LOL) has a birthday Sunday too. So we're staying busy - and no economic turn down here with all these gifts..... geez.

 

well I'll have to update you on the Pb change

 

Right now everyone in the house is fast asleep - Mason actually had a run tonight and lasted longer than normal so things are looking good so far... scary but good.

 

well i better get some sleep so I can start my day early.

I got word today that my boy is defnitely missing me :( It's so sad you know! 

I do worry about him but he is in god care.  I hope his dadda plays with him in the floor..hint hint if you're reading this :)

 

So the Park is awesome  - Yes it is small but it's top notch - geared more to kids, young people. It's a bit odd riding coasters by myself but I don't mind all that much. the Zepplin kicked my butt. The fireworks show is worth the $ to see! I'm going to head back out tonight to see Sister Hazel - I dont' even mind not riding anything tonight - unless of course Maximum RPM is working - it wasn't yesterday :(

 

The beach was nice this morning - there are so many people here in Myrtle Beach!!! It's crazy here - no big surprise though right?

 

Relaxing during the hottest part of the day now - may go out and try to find some sandles for this weekend's wedding...the only thing I need.

 

okay not much to tell unless something happens - but so far so good with Mason - we'l find out later how he does with the neighborhood fireworks.

Well I'm spending my first day away from my epi boy :(

 

I've left him in the charge of my hubby - I know he'll be fine but it's not going to stop me from worrying. He probably doesn't realize yet that I'm not coming home yet- thinks i'm at work.

 

So as I enjoy the fun coasters at Hard Rock park in Myrlte Beach - my mind wanders frequently to my son. If he had another seizure after the one in may - I wouldn't be here but since he is doing so well it gave me the courage to leave - I feel I'm getting to comfortable though....like disaster is wating around the corner and I won't be prepared because i've become to content with him turning out okay....yet I know he'll never be the same or truly okay.

 

Tomorrow being the 4th with fireworks parties people - I'm worried about him even more.  He'll be fine I know this being his mother but that feeling of uneasiness never goes away - seizures have changed our lives forever.

 

But on to happy thoughts - the canopy - is no longer a redneck shelter it's up and looks great. Once I get back on my own computer at home I'll post a pick of how good it actually looks.  I'm enjoying the holiday in Myrlte but I'll be home before the weekend is finished - i can't stay too long away from my boys.

 

His walks are going great - lasting longer each time - i'm so proud of him - I haven't seen any weakness in his legs since he went to only a half of a pill a day. Granted tomorrow and saturday he is going to be taking just a wee bit more since I suspect he'l be a bit more stressed than normal.

 

so far all is well  but I'm missing my boy!